Friday, April 13, 2012

Autism


I've had about a week to digest everything I was told. I knew it was coming, I saw what the doctors, therapists etc saw. I asked for the referral. I filled out the 300 question questionairre and waited months to get an appointment 6 months after that.
Yet the night before the appointment I barely slept. I dreaded it. We needed to go. I still dreaded it. Someone was going to tell me something for sure that would change our whole lives. You would think I would be used to it considering I'd gotten "the news" so many times including the fact that my child had seizure activity and could possibly have a tumor in her brain. Thankfully the MRI news was great. We do have so much to be thankful for.

My daughter has an Autism spectrum disorder.

It's so hurtful to hear. I spent a day crying. I would just be overcome with huge sobs and could barely breath and then be okay for a while and then it would happen again.

Now I'm to the point of needing to pull myself up by my boot straps and get on with it. I am her mother and her voice to the world. I will get her the help she needs to have the best chances of leading a happy\productive life. I refuse to put limits on what kind of amazing person she will become because none of us know and I have big dreams for her.

I've only been officially the mother of an autistic child for a week and already I am faced with the issues. Everyone agrees she needs a lot of help yet everywhere gives me reasons why she can't get that help. The run around is exactly what the seasoned moms said it would be and I've only been at this a week!

We will figure this out. Thankfully I have about six months until she ages out of the zero to three services to find a plan to continue speech, occupational and physical therapy. I am hoping to get her into preschool where she will get everything in one place but IDK what will happen. Take it one day at a time I suppose.

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